Posts Tagged ‘disabled’

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Able Bodied

January 3, 2022

I have one term left at the school of Advanced Bio-Mechanical Rehabilitation. I will write about graduation soon; for now I wish to talk about the difference between being disabled and able bodied. This is, essentially, a transition that I must make at graduation and I will talk of the bio-mechanical aspects of this. I spent the first 28 years of my life in an able bodied body and then, all of a sudden, found myself without so much function that I lost comprehension of what it is to be able bodied. I am then confronted with the question as to what makes one able bodied. Most consider this as the ability to walk, with the ability to perform bodily functions as a second thought, while, in my experience, bodily functions are the first that must be regained. They are intrinsic and it is within intrinsic structure that we must seek the answers to what makes us able bodied.

I am so far from walking and yet feel so close to being able bodied. For too long I lived with catastrophic collapse of the entire body while, at the same time, suffering paralysis from the waist down. Not only was there no hope of regaining the use of my muscles, while in such a condition, I also had little understanding of where hope lay. For nearly five years I wandered in the darkness until I met a gentleman who taught me various eternal truths of the body. I learnt to understand that the structure of my body is not dependent upon the lack of ability to use muscles and so I came to see that the structure of my body could be dramatically improved …..and that’s what I’ve done, over approaching 21 years!

Whereas once I was dead weight, from the waist down, now I have so much levity, from the transformed structure of my head, neck, shoulder girdle, chest and even pelvis, that my entire body has life in it to some degree. Now I can hold my head high, in a purely structural sense, and have so much capacity down to the chest that I’m working on the finishing touches to the structure from the waist up. A little more drawing out of the back, a little more strengthening under the shoulder blades and a little more stitching under the rib cage and I’m pretty much there. The waist down has always been a different story, and in some respects that has not changed, although, even there I have engineered such structural improvement that I truly feel connection through the hip joints and have flow right down into the feet. I no longer live with worry that the flesh of a little toe may start breaking down.

My pelvis has woken up to such a deep level that I’ve embarked on a new phase of regrowing my damaged pelvic floor and left bum cheek. I still want a cushion, but the increased flesh on my bum and the massive improvement in the strength of the lumbar sacral junction, together with greater volume to the pelvis, has resulted in being able to sit so comfortably. To be able to relax, in stature, with no regard for consequences, as those consequences will never be too great, is much of what it is to be able bodied.

Understanding how much disabled people struggle, with the ability to simply be in this world, goes a long way to understanding disability. I’m so flourishing in my ability, to simply be, that I hope, soon, to leave the world of disability behind.

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The Last of the Mohicans

August 19, 2021

Twenty two years ago I stayed in a care home for six weeks following an operation to finally mend my broken collar bone. I can’t say I was really looking forward to the stay and never in my wildest dreams would I have imagined myself enjoying life in a home for disabled people. How wrong I was! I fell in love with the spirit of the place and the philosophy of its founder, Leonard Cheshire. Six months later I moved into the Lodge there; a run down old bungalow in desperate need of some TLC. I’d not just found a community to be a part of, but also an opportunity to put a roof over my head, for a price I could afford, by renovating and maintaining the Lodge and managing land. The combination of the opportunity of a life time and the love and care of an extended family was just what I needed to overcome a life changing accident that had left me a paraplegic. I’m not sure how I would have built a new life for myself without Heatherley Cheshire Home.

The Red Feather symbolises strength and vitality, courage and passion

Two world wars brought out the worst in mankind, but also the best. The camaraderie that Leonard Cheshire experienced led him to seek a new way of coming together in life and, having failed in his first attempt at setting up a communal living project, he set up the most fantastic movement to provide homes for disabled people. Many post war movements sought to capture the spirit of a new age, however, none were strong enough to survive the persisting onslaught of the ‘old order’. The hippies were far too hedonistic and wrapped up in drugs to last the test of time, but even the Leonard Cheshire homes, that were so grounded in a practical way, have fallen prey to an outdated social economic system, together with ever increasing legislation and bureaucracy.

It wasn’t long after joining the community at Heatherley that I realised all was not roses. Head office were starting to take control and the nature of the home was changing from a local community affair to a managed business. In many ways the change was necessary in order for the home to survive, however, you can argue that it hasn’t survived. It has been swallowed up by the old order it sought to replace and the spirit of the new age simply cannot flourish in such a climate. The volunteers are all but gone, friends and relatives are no longer embraced as members of the family and in fact there is no extended family left, no community. All that is left is a business that provides for existence. This is not life and not what those early pioneers began and if it continues we must fear for the future well being of disabled people. It’s not about blaming anyone or being angry, it’s about understanding what has happened so that we may have hope for the future.

The last remnants of spirit remain in the fabric of the place and in those disabled people strong enough to uphold that spirit. I feel like the last of the Mohicans waving the banner of a dying way, a way that I will continue to fight for until it is reborn, and reborn in a way that will last. The ‘old order’ must be defeated and not just in our Cheshire Homes. We must all find a new sense of coming together in community throughout this land and we have those wonderful post war movements of Leonard Cheshire, and others, to show us the way. This is the challenge of our time.